tag:blogger.com,1999:blog-31868877203680888142024-02-18T19:03:26.479-08:00Our Witty WhitneyDeAnn Wellshttp://www.blogger.com/profile/17238376308075624731noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-3186887720368088814.post-44768271273629256522013-02-24T21:32:00.001-08:002013-02-24T21:42:10.873-08:00Cutie Patootie<style>
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<span style="font-size: small;">We are noticing more and more how Whitney loves information
to be absolute.</span><span style="font-size: small; mso-spacerun: yes;"> </span><span style="font-size: small;">Abstract thinking
just confuses her.</span><span style="font-size: small; mso-spacerun: yes;"> </span><span style="font-size: small;">At church, the
children were asked, “what does Jesus do for you to show you that he loves
you?”</span><span style="font-size: small; mso-spacerun: yes;"> </span><span style="font-size: small;">One child said that he gave
her a family.</span><span style="font-size: small; mso-spacerun: yes;"> </span><span style="font-size: small;">Another said that he
gave him a home.</span><span style="font-size: small; mso-spacerun: yes;"> </span><span style="font-size: small;">Whitney signed,
“Jesus died”, then sat down.</span><span style="font-size: small; mso-spacerun: yes;"> </span><span style="font-size: small;">Yep,
she knows the facts, but can’t understand the meaning behind things.</span><span style="font-size: small; mso-spacerun: yes;"> </span></div>
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<span style="font-size: small;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhZGfQzipvVLYuU9hdVeO859Pdv0e4WUzBk7IbtQyG2sSpYJmhU80Ek3OGx9HWH3UsNlL485Svcb1yupxtD77VftHosheyH5CV2d29AAe6qRAj6xB4kzKEwNQM8dqne-opwwMjXyIm8alo/s1600/P1050204.JPG" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhZGfQzipvVLYuU9hdVeO859Pdv0e4WUzBk7IbtQyG2sSpYJmhU80Ek3OGx9HWH3UsNlL485Svcb1yupxtD77VftHosheyH5CV2d29AAe6qRAj6xB4kzKEwNQM8dqne-opwwMjXyIm8alo/s320/P1050204.JPG" width="320" /></a></span></div>
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<span style="font-size: small;">On the same lines, schedules have become a very important
part of her life.</span><span style="font-size: small; mso-spacerun: yes;"> </span><span style="font-size: small;">They help her to
organize her complex day into facts and calm her anxiety about each day.</span><span style="font-size: small; mso-spacerun: yes;"> </span><span style="font-size: small;">She has learned that anything on the
calendar is absolute truth.</span><span style="font-size: small; mso-spacerun: yes;"> </span><span style="font-size: small;">If it
is there, it usually happens. I walked by the fridge with our Martha Stuart
calendar and saw that Whitney added something.</span><span style="font-size: small; mso-spacerun: yes;"> </span><span style="font-size: small;">“Dannie come over” spelled correctly and everything.</span><span style="font-size: small; mso-spacerun: yes;"> </span><span style="font-size: small;">Ha ha, my smart girl wanted her
friend to come over.</span><span style="font-size: small; mso-spacerun: yes;"> </span><span style="font-size: small;">If it’s
on the calendar, it must be true.</span></div>
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<span style="font-size: small;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjRbwMPbyedhL1TlbURnyCa4ZwlqFtBWSq52SEZEamkEzx53Q7VztkpZuMOl2gXJNduMEdezrNjU9_JbbXY-yM-ogwTyKqN3zTOWJuFi6_noxW3CzLwMJ0QZpSKyYhza6pu9F5GbNimHVU/s1600/P1050313.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjRbwMPbyedhL1TlbURnyCa4ZwlqFtBWSq52SEZEamkEzx53Q7VztkpZuMOl2gXJNduMEdezrNjU9_JbbXY-yM-ogwTyKqN3zTOWJuFi6_noxW3CzLwMJ0QZpSKyYhza6pu9F5GbNimHVU/s320/P1050313.jpg" width="240" /></a></span></div>
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<span style="font-size: small;">Friends are so important.</span><span style="font-size: small; mso-spacerun: yes;"> </span><span style="font-size: small;">Whitney wants friends desperately.</span><span style="font-size: small; mso-spacerun: yes;"> </span><span style="font-size: small;">After a fun cheerleading practice with coaches giving her
piggyback rides, and lifting her up into different fun cheerleading poses, she
always says that her favorite part of cheerleading is her friends Lucy and Ally.</span><span style="font-size: small; mso-spacerun: yes;"> </span><span style="font-size: small;">I’m so grateful for this cheerleading
program.</span><span style="font-size: small; mso-spacerun: yes;"> </span><span style="font-size: small;">It is a place where
Whitney can be her self and feel a sense of friendship each week.</span><span style="font-size: small; mso-spacerun: yes;"> </span><span style="font-size: small;">This photo of her and her friend
Ally won the “Cutie patooies” award in the January issue of the <i style="mso-bidi-font-style: normal;">North Gilbert Breeze newspaper.</i></span></div>
DeAnn Wellshttp://www.blogger.com/profile/17238376308075624731noreply@blogger.com0tag:blogger.com,1999:blog-3186887720368088814.post-63567871772565064152012-12-14T14:17:00.004-08:002012-12-14T14:18:40.581-08:00Still making us laugh<!--[if gte mso 9]><xml>
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This past week has been quite eventful.<span style="mso-spacerun: yes;"> </span>My mother, Whitney’s grandmother, past
away.<span style="mso-spacerun: yes;"> </span>She has battled Parkinson’s
for 40 plus years.<span style="mso-spacerun: yes;"> </span>I am always
interested in Whitney’s response to all of life’s changes.<span style="mso-spacerun: yes;"> </span>Last night at the viewing, she stood
looking at grandma for a few seconds before she realized it was her.<span style="mso-spacerun: yes;"> </span>Then she excitedly signed
“Grandma”.<span style="mso-spacerun: yes;"> </span>Then she touched her
face and signed, “cold”.<span style="mso-spacerun: yes;"> </span>All of a
sudden I see Whitney play “got your nose” with Grandma.<span style="mso-spacerun: yes;"> </span>I mean, who does this?<span style="mso-spacerun: yes;"> </span>Only Whitney.<span style="mso-spacerun: yes;"> </span>When the casket was closed, Whitney had a look of concern
and signed, “what is happening with Grandma”?<span style="mso-spacerun: yes;"> </span>I couldn’t imagine what she thought about her grandma being
put in a box with the lid closed.<span style="mso-spacerun: yes;">
</span>I tried to explain that her body has died, but her spirit lives with
Jesus.<span style="mso-spacerun: yes;"> </span>She finished my sentence, “and
with Gabby”.<span style="mso-spacerun: yes;"> </span>I think she
understands as well as a 9 year old can.</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgmPUleDY-xcPNVx2xzTY_L5pYKjPrA3guuMRMDYupLhj79nCmLGng5ua_QPKBio2MhuFhuuUYB4Jfty5_q5MHg7yMmcbQvlyXvE_M00tDtmx1FikklV6QFTt3jxWDYQhENPD2_hpeDA6U/s1600/P1050312.JPG" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="150" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgmPUleDY-xcPNVx2xzTY_L5pYKjPrA3guuMRMDYupLhj79nCmLGng5ua_QPKBio2MhuFhuuUYB4Jfty5_q5MHg7yMmcbQvlyXvE_M00tDtmx1FikklV6QFTt3jxWDYQhENPD2_hpeDA6U/s200/P1050312.JPG" width="200" /></a></div>
<o:p> </o:p>Last week Whitney had her first Cheer competition.<span style="mso-spacerun: yes;"> </span>She did great!<span style="mso-spacerun: yes;"> </span>However, before the event, Whitney’s
dad told her to do her “rocker hands”.<span style="mso-spacerun: yes;">
</span>During the competition, when she was lifted into the air in a split, she
whips out her best rocker hands and facial expression. <span style="mso-spacerun: yes;"> </span>I was so busy taking pictures that I
didn’t notice.<span style="mso-spacerun: yes;"> </span>When I got home and
pulled up the pics on the computer…there is was.<span style="mso-spacerun: yes;"> </span>I couldn’t believe it.<span style="mso-spacerun: yes;">
</span>Here’s the picture, I’m sure it will make you smile.<br />
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<!--EndFragment-->DeAnn Wellshttp://www.blogger.com/profile/17238376308075624731noreply@blogger.com3tag:blogger.com,1999:blog-3186887720368088814.post-64698940121786491492012-12-02T22:03:00.001-08:002012-12-02T22:03:12.668-08:00THE CHAMPIONSYesterday Whitney performed with the CHAMPIONS, a cheerleading group for children with special needs. Nine years ago, I would have never thought that this was possible. After the performance, I couldn't help but stand up, cheer and cry. This was only a parent show, but I was so proud of her. Next week will be the first competition in her full uniform. I was so amazed that she made it through 2 1/2 hours of waiting, practicing and performing in a room with over 500 people and loud music. With her sensory issues, this was not easy, but she did great. She has come so far! Here is our favorite video clip. Hope it makes you all smile. <br />
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<iframe allowfullscreen='allowfullscreen' webkitallowfullscreen='webkitallowfullscreen' mozallowfullscreen='mozallowfullscreen' width='320' height='266' src='https://www.blogger.com/video.g?token=AD6v5dwa91IwreIYEknhJMsbPlyFBWNdIYV5zGt8GvTzMg-zSwqy6VYv8iPR1yulBfANdUg3lN-4id6c8RvIZq6Tfw' class='b-hbp-video b-uploaded' frameborder='0'></iframe></div>
<br />DeAnn Wellshttp://www.blogger.com/profile/17238376308075624731noreply@blogger.com0tag:blogger.com,1999:blog-3186887720368088814.post-48915749109857043542012-10-19T20:32:00.001-07:002012-10-19T20:36:28.577-07:00<h2 style="text-align: center;">
It's All About The Outfit</h2>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgjWdxwtY6fDtjWpVaoavolV5p2f1klqfwfumAfuesWJ84Gckk9YGJboA-sMSvNAIn-z151YPXolg29-NJfazXRQX-_1Ye4oxWr5Q5ubgVkunxMUUjvw-n-Polr2d9Z9c3iQ8-ahyEMsRk/s1600/Schnepf+farms+2012+002.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="150" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgjWdxwtY6fDtjWpVaoavolV5p2f1klqfwfumAfuesWJ84Gckk9YGJboA-sMSvNAIn-z151YPXolg29-NJfazXRQX-_1Ye4oxWr5Q5ubgVkunxMUUjvw-n-Polr2d9Z9c3iQ8-ahyEMsRk/s200/Schnepf+farms+2012+002.jpg" width="200" /></a><span style="font-family: Arial,Helvetica,sans-serif;">With Whitney,
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DeAnn Wellshttp://www.blogger.com/profile/17238376308075624731noreply@blogger.com2tag:blogger.com,1999:blog-3186887720368088814.post-40634930720334329102012-10-05T20:02:00.000-07:002012-10-05T20:04:11.550-07:00<!--[if gte mso 9]><xml>
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<h4>
<span style="font-family: "Arial","sans-serif";">Whitney may
be the most creative person I have ever met.<span style="mso-spacerun: yes;"> </span></span></h4>
<span style="font-family: "Arial","sans-serif";"><span style="mso-spacerun: yes;"> </span>Her dad was watching golf on T.V. last week.<span style="mso-spacerun: yes;"> </span>She found a small plastic golf club to play
with.<span style="mso-spacerun: yes;"> </span>She tried a few puts, but then,
she turned her club into a hockey stick.<span style="mso-spacerun: yes;">
</span>After that it was a back scratch-er, horse, gun and a pogo stick.<span style="mso-spacerun: yes;"> </span>Later I was peeling carrots in the
Kitchen.<span style="mso-spacerun: yes;"> </span>She walked in, picked up two
peelings and held them up to her ears like earrings.<span style="mso-spacerun: yes;"> </span>She is always creating something.<span style="mso-spacerun: yes;"> </span></span></div>
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<span style="font-family: "Arial","sans-serif";">She also collects blues clues and Magenta dogs.<span style="mso-spacerun: yes;"> </span>(Magenta is a
character on the TV. show Blue’s Clues)<span style="mso-spacerun: yes;">
</span>Austin, (Whitney’s 17 year old brother) sat next to Whitney and pointed
out that she had 6 Magenta’s.<span style="mso-spacerun: yes;"> </span>Whitney
corrected him and said, “7”.<span style="mso-spacerun: yes;"> </span>Austin
said, “No look, 1,2 3, 4, 5, 6”.<span style="mso-spacerun: yes;"> </span>Whitney
put her hands up like paws, and stuck her tongue out like a dog and signed “7”.</span></div>
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DeAnn Wellshttp://www.blogger.com/profile/17238376308075624731noreply@blogger.com0tag:blogger.com,1999:blog-3186887720368088814.post-48916299541135259872012-09-26T22:37:00.000-07:002012-09-27T19:24:15.648-07:00<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhJtlry6HW4i4KvSnTlF3dqLVBoZh6JAzXnZwwVu5AcbykY-pLO9qmvI2WepB5UN3PSHxblMtAiH1Of1lN0MCQ000Hl819WUXgs3yP-jpH_eL3sIVlLR3QFHpCfOIeIkp1eimbiN1nfpE4/s1600/AAAtherapydog.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhJtlry6HW4i4KvSnTlF3dqLVBoZh6JAzXnZwwVu5AcbykY-pLO9qmvI2WepB5UN3PSHxblMtAiH1Of1lN0MCQ000Hl819WUXgs3yP-jpH_eL3sIVlLR3QFHpCfOIeIkp1eimbiN1nfpE4/s320/AAAtherapydog.jpg" width="256" /></a></div>
<h2>
<span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"> Home from the Hospital!</span></h2>
<span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">We came home from Phoenix Children's hospital today after Whitney had a Melody Valve placed in her pulmonary valve. Hospital stays are never fun, however, Whitney's personality continued to make people smile. Whitney taught every nurse that worked with her a little sign language. The wonderful hospital team brought her a countless number of dog toys, as well as dolls, movies and an iPad to play with. She would actually sign, "I like the hospital, the hospital is fun". Eventually her blood pressure would have to be taken, or blood would have to be drawn and she would sign, "I don't like the hospital. I hurt, and I want to go home". She signed several times, "I want to go home and jump on the trampoline with Nick". She still can't walk because her leg is so sore, but she was thinking about jumping on the trampoline. The most difficult part of our stay for me was when she signed, "Where was Gabby when she died? (She knew the answer was "in the hospital") She continued, "am I going to die?" Then she signed, "I'm scared because Gabby died at Hospital. Whitney's at hospital" My heart ached with concern for her fears. I also was amazed that she could communicate all of this to me. I explained to Whitney that she was not going to die and was going home to be with her family, but she had a look of distrust in her eye. I knew she wouldn't believe my words until she actually got to go home. When we finally arrived home tonight, as expected, she was so happy. She asked me what my favorite part of the hospital was. After I answered, she signed, "My favorite (was the) two hospital dogs". My heart is filled with gratitude for all of her wonderful Doctors, nurses and especially Raulie and Tiger. This picture was the smile that Raulie brought right after she had been so upset. Love those dogs!</span><br />
<br />
<br />DeAnn Wellshttp://www.blogger.com/profile/17238376308075624731noreply@blogger.com0tag:blogger.com,1999:blog-3186887720368088814.post-58739551583233810452012-09-22T20:40:00.000-07:002012-09-22T20:46:43.771-07:00<!--[if gte mso 9]><xml>
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<span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">Saturday is a Special Day</span></h4>
<span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">Today one of Whitney's previous classroom aids came to watch Whitney at cheer practice. Before I put Whitney to bed she signed, "Whitney is happy when she sees Mary. What made Mom happy when she was a little kid?" Thanks Mary, for making Whitney happy today. </span></div>
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<span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">Later, I took a 20 minute nap while Jeff watched Whitney.<span style="mso-spacerun: yes;"> </span>Amazing what a girl can do in 20
minutes.<span style="mso-spacerun: yes;"> </span>She had colored blue feet on about
100 3x5 cards, and strategically placed them throughout our hallway.<span style="mso-spacerun: yes;"> </span>She even taped one on my bedroom door.<span style="mso-spacerun: yes;"> </span>I asked her what all of that was and she said
that it was Blues clues walking.<span style="mso-spacerun: yes;"> </span>Whitney
used to cry whenever we would work on handwriting or even coloring as she has difficulty with her fine motor skills.<span style="mso-spacerun: yes;"> </span>I think I will leave them out all
weekend.<span style="mso-spacerun: yes;"> They make me smile.</span></span></div>
DeAnn Wellshttp://www.blogger.com/profile/17238376308075624731noreply@blogger.com4tag:blogger.com,1999:blog-3186887720368088814.post-22271791873204058522012-09-19T19:04:00.002-07:002012-09-27T19:23:04.571-07:00<!--[if gte mso 9]><xml>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjecCod24QQfh_2FtnfbRmFi-HhqQaoEG1bONEUXpTsMg7_VglNlj4fgHqrYZF1OUngLneNups-wRpeewIqB6WxwDTAQuDfqv18aFkegxPwJfKQ9FdmsDbuAiHhZyziSey4EY8qImfSboQ/s1600/IMG_0001.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjecCod24QQfh_2FtnfbRmFi-HhqQaoEG1bONEUXpTsMg7_VglNlj4fgHqrYZF1OUngLneNups-wRpeewIqB6WxwDTAQuDfqv18aFkegxPwJfKQ9FdmsDbuAiHhZyziSey4EY8qImfSboQ/s320/IMG_0001.jpg" width="250" /></a></div>
<h2 class="MsoNormal" style="text-align: center;">
<span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><span style="background-color: white;">Witty Whitney </span></span></h2>
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<span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">Our amazing daughter Whitney has CHARGE syndrome.<span style="mso-spacerun: yes;"> </span>Despite countless surgeries and many
disabilities, she seems to go through life making people smile (even when it is
often embarrassing).<span style="mso-spacerun: yes;"> </span>This blog is
a collection of "Whitney stories", devoted to bringing her amazing personality to anyone who needs to smile.</span></h3>
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<br /></div>
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<span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">This is only the Beginning</span></h4>
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<span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">:</span></div>
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<span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">This year we started Whitney in a competitive cheer team for
special needs.<span style="mso-spacerun: yes;"> </span>She loves to go each
Saturday.<span style="mso-spacerun: yes;"> </span>After she completes a cheer or
does a pose she signs, “I’m a big girl”.<span style="mso-spacerun: yes;">
</span>They each have a teen helper to keep them on task and show them what to
do.<span style="mso-spacerun: yes;"> </span>Last week she grabbed the end of her
helper’s long braid and tickled both of her own armpits with it.<span style="mso-spacerun: yes;"> </span>This is how Whitney makes people smile and
sometimes causes embarrassment to Jeff and I.</span></div>
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<br /></div>
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<span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">We have a lovely home teacher from church.<span style="mso-spacerun: yes;"> </span>He is always sweet to Whitney.<span style="mso-spacerun: yes;"> </span>He lets her wear his tie whenever he comes
over and he is always friendly to her.<span style="mso-spacerun: yes;">
</span>She unfortunately loves his bald head.<span style="mso-spacerun: yes;">
</span>He graciously bends his head down and lets her rub it as he know that
she can’t help herself.<span style="mso-spacerun: yes;"> </span>Last week in
church she went up to say hello to his family as she does each Sunday.<span style="mso-spacerun: yes;"> </span>She then climbs up and rubs his head as he is
sitting in church.<span style="mso-spacerun: yes;"> </span>Again, we are
mortified but she brings a smile to everyone around us.</span></div>
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<span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><br /></span></div>
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<span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">She can communicate, now what?</span></h4>
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<span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">For many years we have worked tirelessly at helping Whitney
to communicate.<span style="mso-spacerun: yes;"> </span>She was my inspiration
in going back to school to work on my BA in Speech.<span style="mso-spacerun: yes;"> </span>She now signs fluently and also uses an Augmentative
communication device when we don’t know what she is signing.<span style="mso-spacerun: yes;"> </span>She wants to be a friend to everyone, but
doesn’t know how, so, she tries to ask endless questions to everyone to learn
about what they like.<span style="mso-spacerun: yes;"> </span>She has gotten
very creative in her questions, even if she uses the same questions with
everyone.<span style="mso-spacerun: yes;"> </span>She has gone from “do you
have a dog” and “do you have a trampoline”, to “What book do you not
like?”<span style="mso-spacerun: yes;"> </span>As well as “what T.V. show do you
not like?”<span style="mso-spacerun: yes;"> </span>Previously at cheerleading,
the person in charge was talking to me about the uniform.<span style="mso-spacerun: yes;"> </span>Whitney kept interrupting by signing over and
over, “What color of hair did you have when you were a little girl?”<span style="mso-spacerun: yes;"> </span>The blond woman clearly was uncomfortable
answering her question and so tried to ignore her, but Whitney would not stop.<span style="mso-spacerun: yes;"> </span>She finally rolled her eyes and told her
brown.<span style="mso-spacerun: yes;"> </span>Whitney was satisfied.</span></div>
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<span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">Last year Whitney was watching T.V. when her brother Nick
asked me to pump up a basketball for him.<span style="mso-spacerun: yes;">
</span>I went out into the garage and pumped up the ball.<span style="mso-spacerun: yes;"> </span>When I came in the house, Whitney was not
watching T.V.<span style="mso-spacerun: yes;"> </span>I checked the entire house
3 times, then the back yard and the pool.<span style="mso-spacerun: yes;">
</span>She was no-where.<span style="mso-spacerun: yes;"> </span>My heart was
pounding.<span style="mso-spacerun: yes;"> </span>I sent her brother Austin on a
bike in one direction, and I hopped in the car and drove in the other.<span style="mso-spacerun: yes;"> </span>Two blocks away I saw a group of people
gathered around Whitney.<span style="mso-spacerun: yes;"> </span>I jumped out of
the car and ran to hug her.<span style="mso-spacerun: yes;"> </span>One stern
woman that held her would not let me have her back before she gave me the third
degree.<span style="mso-spacerun: yes;"> </span>I signed to Whitney, “what where
you doing?”<span style="mso-spacerun: yes;"> </span>“Where were you going?”<span style="mso-spacerun: yes;"> </span>She signed, “too Wal-Mart to buy a Buzz Light
year”.<span style="mso-spacerun: yes;"> </span>As humiliated as I felt, and
mortified that I had not kept her safe that day, I had to smile at her creative
idea and determination in accomplishing her goal.</span></div>
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<br />
<span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">Whitney is fascinated with people who have different skin
color.<span style="mso-spacerun: yes;"> </span>One of her recent questions was,
“do you have a mom?<span style="mso-spacerun: yes;"> </span>What color is
she?”<span style="mso-spacerun: yes;"> </span>In Fry’s there is a lovely African
American man at the checkout.<span style="mso-spacerun: yes;"> </span>In
Gilbert, AZ, that is a rare sight to see.<span style="mso-spacerun: yes;">
</span>Of course Whitney notices and all the way out the door she is signing
over and over, “black man, black man, black man”!<span style="mso-spacerun: yes;"> </span>Thank goodness most people don’t know sign
language.<span style="mso-spacerun: yes;"> </span>Another inappropriate behavior
is that she loves to touch people’s double chins.<span style="mso-spacerun: yes;"> </span>We have talked to her about not doing
this.<span style="mso-spacerun: yes;"> </span>She can tell us that it is thumbs
down behavior to do this, and that it can make people sad.<span style="mso-spacerun: yes;"> </span>However, when it comes down to it, she cannot
resist touching peoples double chins. <span style="mso-spacerun: yes;"> </span>To our dismay, she loves to wiggle the flab
under everyone’s arms.<span style="mso-spacerun: yes;"> </span>In addition, she
loves large bellies.<span style="mso-spacerun: yes;"> </span>She wants to pat
everyone’s bellies.<span style="mso-spacerun: yes;"> </span>The larger the
belly, the more fascinated she becomes with touching it.<span style="mso-spacerun: yes;"> </span>Her inappropriate behavior does not make me
smile, but her innocence sure does.<span style="mso-spacerun: yes;"> </span>Only
if we could all love our differences as much as Whitney does. </span></div>
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<br /></div>
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<span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">Yesterday Whitney and I went to watch Austin’s basketball
game.<span style="mso-spacerun: yes;"> </span>She kept trying to ask me the same
questions over and over.<span style="mso-spacerun: yes;"> </span>I finally said
to her that it was time for her to play with her toys.<span style="mso-spacerun: yes;"> </span>I said, “I like to watch basketball.”<span style="mso-spacerun: yes;"> </span>Whitney signed, “Whitney doesn’t like to
watch basketball.<span style="mso-spacerun: yes;"> </span>Why?<span style="mso-spacerun: yes;"> </span>Because it’s boring.”<span style="mso-spacerun: yes;"> I again have to smile that she can tell me so much when for so many years...she could not.</span></span></div>
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<span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><span style="mso-spacerun: yes;"><br /></span></span></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjQkiGjeXoIlOnQL5SjQCXX-Y4CjpUE3XxJQbtvMJUHAvw9YKMBJP_mVJUnbVfOf7f-fBbl0b7JihnDIVC8y59-ijIVrQMF5dDVB5hvKm_KRPWCUc4pU9wEJCjGanjJ7wa5EgNX8bhXqtc/s1600/friends.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><br /></a></div>
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<span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><span style="mso-spacerun: yes;">Last year Whitney started 3rd grade at our neighborhood school, Val Vista Lakes Elementary. On her first day, I went in at lunch to see how she was doing. She was in the nurses office with two new friends who also happen to have trachs. Whitney was crying and I asked her what was wrong. She signed with emotion, "I love my new trach friends". I then realized how alone Whitney had been feeling, being the only person that she knew with a trach. She finally had friends like her. </span></span></div>
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<span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">Last summer, Whitney best friend Gabby past away.<span style="mso-spacerun: yes;"> </span>She has been fascinated with death since then.<span style="mso-spacerun: yes;"> </span>She asked a friend of mine if they have a
dog.<span style="mso-spacerun: yes;"> </span>My friend said that her dog died
last month.<span style="mso-spacerun: yes;"> </span>Whitney signs to her
excitedly, “Your dog lives with Gabby and Jesus”.<span style="mso-spacerun: yes;"> </span>How can you not smile at her innocent
understanding of death?<span style="mso-spacerun: yes;"> </span>Recently she
asked her new nurse if she has a Mom and a Dad.<span style="mso-spacerun: yes;">
</span>She told Whitney that her mom recently had died.<span style="mso-spacerun: yes;"> </span>Now Whitney asks me on a daily basis if I’m
going to die.<span style="mso-spacerun: yes;"> </span>Whenever I sign to her
that I’m tired, she will sign, “Are you going to die”?<span style="mso-spacerun: yes;"> </span>As concerned as I am about her worried about
her Mom dying I can’t help but smile when she asks me such an innocent and odd
question. </span></div>
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<span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">Potty training has been
Whitney’s nemesis.<span style="mso-spacerun: yes;"> </span>She is nine.<span style="mso-spacerun: yes;"> </span>She can read.<span style="mso-spacerun: yes;"> </span>She does math.<span style="mso-spacerun: yes;"> </span>Still wears diapers.<span style="mso-spacerun: yes;"> </span>We have potty trained off and on for 5
years.<span style="mso-spacerun: yes;"> </span>She has picked out several
potties, and potty rings that fit on the big potty.<span style="mso-spacerun: yes;"> </span>We have tried charts, bribes, and spoken to
many specialists on the matter.<span style="mso-spacerun: yes;"> </span>A year
ago, we took a break when it was obvious that the problem was anxiety.<span style="mso-spacerun: yes;"> </span>Recently however, Whitney asked if we could
buy her a pink potty.<span style="mso-spacerun: yes;"> </span>So, a few days
ago, we went to Target and she picked out the Princess potty.<span style="mso-spacerun: yes;"> </span>She even sat on it a few times!<span style="mso-spacerun: yes;"> </span><span style="mso-spacerun: yes;"> </span>We
have it in the great room, where she usually spends her time.<span style="mso-spacerun: yes;"> </span>She is more determined to learn how to do
this than she ever has been, so we are hopeful that this is her final
potty.<span style="mso-spacerun: yes;"> </span>Tonight, Nick was standing in
front of the potty talking to me. <span style="mso-spacerun: yes;"> </span>Quick
as a flash, Whitney grabbed Nick’s shorts and de-pantsed him.<span style="mso-spacerun: yes;"> </span>Nick grabbed his shorts, yanked them up and
yelled, “Thumbs down Whitney, thumbs down”.<span style="mso-spacerun: yes;">
</span>Whitney then dropped her pants, and sat on the potty.<span style="mso-spacerun: yes;"> </span><span style="mso-spacerun: yes;"> </span>It
was so nice of her to want to share her new potty with Nick.<span style="mso-spacerun: yes;"> </span>We are still waiting for some “successful”
sitting.</span></div>
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DeAnn Wellshttp://www.blogger.com/profile/17238376308075624731noreply@blogger.com11